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| When Medical Inaccuracies Shape Mass Media Coverage |
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| Living - The Dialogue | |||
| TS-Si News Service | |||
| Saturday, 09 August 2008 17:30 | |||
 London, United Kingdom. New findings argue for the persistence of sex-linked chromosomes, such as the male Y  chromosome, refuting theories that the Y is doomed to extinction.
The results confirm that although these chromosom...The medical accuracy of media reports can be a problem for many people, not least those with any degree of involvement with Harry Benjamin Syndrome (HBS). There have been no focused research studies that examine HBS medical reporting; however, there are parallel cases well worth study.
Media coverage of the persistent vegetative state and end-of-life decision-making. Éric Racine, Rakesh Amaram, Matthew Seidler, Marta Karczewska, Judy Illes. Neurology published 6 August 2008. doi: 10.1212 / 01.wnl.0000320507.64683.ee
A team of bioethicists [N1] examined the media coverage featuring the famous and controversial case of an American, Theresa Schiavo. She had a cardiac arrest in 1990 that caused irreversible
brain damage, which led to a persistent vegetative state diagnosis. A few years later, this diagnosis became a source of conflict over the interruption of artificial nutrition. The "Schiavo Case" was widely discussed from a medical, ethical and social standpoint in the United States and elsewhere. In an article published in Neurology, a research team examines the media coverage featuring this famous case. The team was composed of Dr. Éric Racine [N2] of the Institut de recherches cliniques de Montréal (IRCM) and experts from Stanford University and the University of British Columbia (UBC).
The study reviewed American daily newspapers that were most prolific about this story. A total of 1,141 articles and over 400 letters to the editor were analyzed from the:
Never before had the media coverage of such a clinical case been studied so extensively. The accuracy and the nature of the statements on Terri Schiavo's neurological condition, her behaviours, her behavioural repertoire, her prognosis and the withdrawal of treatment were examined.
"In the course of our research, we were surprised by the amount of medical inaccuracies that these newspapers had published, said Dr. Racine. Some journalists even wrote about Mrs. Schiavo's reactions to specific words or expressions supposedly showing that she was conscious." More than scientific and medical information, the legal, political and ethical dimensions made the headlines.
Only 1% of the articles examined gave a definition of the "persistent vegetative state," an essential concept to understand the issues at stake. The persistent vegetative state is an established neurological condition characterized by severe lesions to the
cerebral cortex, which eliminate higher functions: inability to communicate, absence of memory, absence of pain, etc. However, the brain stem responsible for vital functions is not damaged, which accounts for the patients' reflexes and their ability to breathe and swallow independently. Despite the fact that Terri Schiavo's medical condition did not allow any reasonable hope of recovery, a fifth of all articles (21%) contained statements according to which her condition would improve.
"Our observations show that the press capitalized on the controversy to a large extent, and selling copies mattered more than delivering scientific information. Media coverage sustained myths and false hopes," explains Éric Racine.
The Neurology article provides an objective measure of misinformation, which underlined that the information available to the media had limitations. "The public debate surrounding this case showed that the medical, ethical and legal consensuses on the legitimacy of the withdrawal of treatment in accordance to a patient's will were challenged."
In fact, Racine points out that while in the 60's and 70's people mostly rallied over the right to refuse treatment, an opposite pressure was applied in the Schiavo Case by relatives and public opinion. "This case is quite original because it reveals the emergence of a pro-life social stream, a trend that has now reached Canada," adds the researcher.
For their misunderstanding of the subject matter or their bias, are journalists to be blamed? Mass media have become a space of complex social interaction where the public takes its information and reacts to it. However, the Internet and the media cannot replace official sources, be they medical, legal or political.
In order to improve the quality of the information that is relayed to the public, families and key-actors, specialists must adopt strategies that will take into account the limitations identified in the media coverage of the Schiavo Case. Such ethical and medical debates would certainly benefit from information that is both more accurate and more accessible to the layperson.
 The TS-Si News Service is a collaborative effort by TS-Si.org editors, contributors, and corresponding institutions. Sources can include the cited individuals and organizations, as well as TS-Si.org staff contributions. Articles and news reports do not necessarily convey official positions of TS-Si, its partners, or affiliates. We welcome your comments. Use the form below to leave a public comment or send private correspondence via the TS-Si Contact Page. We will not divulge any personal details or place you on a mailing list without your permission.TS-Si is dedicated to the acceptance, medical treatment, and legal protection of individuals correcting the misalignment of their brains and their anatomical sex, while supporting their transition into society as hormonally reconstituted and surgically corrected citizens.
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