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| Including Children In Hospital Care Discussions Reduces Distress |
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| SciMed - Healthcare | |||
| TS-Si News Service | |||
| Monday, 25 July 2011 15:00 | |||
 Dublin, Ireland. Children who are excluded from discussions about their hospital care often feel scared and angry that no-one is listening to them or telling them what is going on.This is an important problem in a wide variety of clinical settings, but takes on a special relevance when life-threatening procedures and/or special surgical interventions are involved. Irish researchers spoke to 55 children and teenagers, aged from seven to 18, from three hospitals, individually or in focus groups. The feedback they received has led the Dublin-based team to call for guidelines to ensure that children's voices are heard when it comes to matters that directly affect their health. Their findings appear in the Journal of Clinical Nursing.  Imelda Coyne is a Professor in the School of Nursing and Midwifery at Trinity College Dublin (Coláiste na Tríonóide, Baile Átha Cliath). "Healthcare professionals and parents appear to play a significant role in whether children are encouraged and able to take part in decisions about their health," says Coyne. "Clearly some may have reservations or concerns about children's participation and this suggests the need for clear guidelines/policies that reflect the views of all stakeholders." The bottom line: "Health professionals and parents need to do more to consult with children and include them in decisions."There were equal numbers of children with acute and chronic illnesses in the study, from wards and clinics in both general and children's hospitals. Most had been hospitalised before (71 per cent) stayed less than seven days (85 per cent) and lived with two parents (80 per cent). Key findings of the study included:
The children's comments included:
"Despite the large number of reports and publications supporting children's right to participate, the actual implementation of the principle in healthcare is questionable" says Professor Coyne. "Healthcare organisations need to develop cultures where participation is firmly embedded, not just a desirable add-on. Communicating with children, and including them in decisions about their care, conveys respect, enhances and develops their decision-making capabilities and contributes to psychosocial well-being. Adopting a child-centered approach is an important investment." CitationParticipation in communication and decision-making: children and young people's experience in a hospital setting. Imelda Coyne and Pamela Gallagher. Journal of Clinical Nursing 2011; 20(15-16): 2334-2343. doi:10.1111/j.1365-2702.2010.03582.x
Abstract Aim. To explore hospitalised children and young people’s experiences of participation in communication and decision-making. Background. There is a growing recognition internationally that children and young people have a right to participate in matters that affect their lives. Although this has led to more support for children’s participation in communication exchanges and decision-making in health care, there remains a lack of studies in this area. Design. Qualitative. Method. Data were obtained through a combination of focus groups and single interviews with participants aged 7–18 (n = 55), from three hospitals in Ireland. Results. Children wanted to be included in communication exchanges but appeared to occupy a marginal role with discussions largely carried out between parents and health professionals. They wanted to participate in ‘small’ everyday decisions about their care and treatment but were constrained mainly by adults’ actions. Conclusion. Although children want to be included in the decision-making process, some prefer to leave the more ‘serious’ decisions to parents and health professionals, whilst others prefer to share the decision. Children’s preferences can vary; therefore, decision-making should be seen as being on a continuum rather than an ‘all or nothing’ basis. Relevance to clinical practice. Health care professionals and parents appear to play a significant role on whether children’s efforts to participate are facilitated and supported in the hospital setting. Clearly, some may have reservations/concerns about children’s participation, which suggests the need for clear guidelines/policies that reflect all stakeholder views. Children should be supported in having their voices heard in matters that directly affect their lives. Keywords: children, communication, decision-making, hospital, nurses, nursing.
 The TS-Si News Service is a collaborative effort by TS-Si.org editors, contributors, and corresponding institutions. Sources can include the cited individuals and organizations, as well as TS-Si.org staff contributions. Articles and news reports do not necessarily convey official positions of TS-Si, its partners, or affiliates. We welcome your comments. Use the form below to leave a public comment or send private correspondence via the TS-Si Contact Page. We will not divulge any personal details or place you on a mailing list without your permission.TS-Si is dedicated to the acceptance, medical treatment, and legal protection of individuals correcting the misalignment of their brains and their anatomical sex, while supporting their transition into society as hormonally reconstituted and surgically corrected citizens.
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| Last Updated on Monday, 25 July 2011 11:12 |
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